How to Cope When Your Newborn Has Down Syndrome

Having a baby diagnosed with Down syndrome can shake up your family and tear apart the vision you held of the "perfect family." The loss of this vision causes a grieving process for some, followed by many questions and uncertainty for the future. Once you meet your baby and feel the special bond that envelops you, some of your initial fears may dissipate. It is important to find loving people to surround your family with who will remain positive and uplifting.

Things You'll Need

  • Down syndrome network information

Instructions

  1. Contact Medical Professionals

    • 1

      Research medical professionals to provide care for your baby. Request medical referrals from your pediatrician to get your baby evaluated and checked early for illnesses associated with Down syndrome.

    • 2

      Schedule appointments with syndrome specialists, such as physical therapists, to work with your baby to maximize movement and learning. Follow the therapist's advice to find out how to help your little one in between sessions.

    • 3

      Research and read literature about Down syndrome, but realize that your newborn won't exhibit every characteristic. Make a list of questions to present to the doctor during each checkup.

    Seek Support

    • 4

      Find out if your location has a Down Syndrome Network. Contact this organization to learn pertinent information about Down syndrome.

    • 5

      Locate other parents of children with Down syndrome to talk with. Ask questions and observe their children taking part in daily activities.

    • 6

      Communicate with family and friends about your feelings. Ask for help with your newborn if you need it, since this can be an exhausting time.

    Get to Know Your Baby

    • 7

      Treat your baby like any other. Think of your little one as an individual first; the Down syndrome diagnosis is secondary. Encourage your family to bond with the new arrival and spend time with him just like any other baby.

    • 8

      Get to know his personality. Celebrate his development and look forward to many achievements, because they will happen.

    • 9

      Communicate with your baby by reading books or singing to him. It is important to provide stimulation to babies with Down syndrome to encourage learning.

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