The Challenges of Being a Parent of a Child With Autism

Behavior Issues

• At the center of autism seems to be an array of behavior problems. Children with autism might have trouble using language or communicating, difficulty interacting with peers and adults or might act in inappropriate ways. Children with autism need frequent redirection to reduce these behaviors, and they also often require various therapies to improve communication or handle stress. Parents need to find tricks that help calm their child, such as the use of a weighted blanket or sensory room, and discover activities their child enjoys. Figuring out these tricks can take time and some trial-and-error.

Burnout

• When a parent first hears the diagnosis of autism, one of the best things to do is ample research -- parents need to become experts about autism in general but also how it applies to their individual child. Parenting a neurotypical child is exhausting, but doing research and carting your child to various therapies adds more stress. Additionally, you might feel a swirl of emotions about your child̵7;s diagnosis that leads to mental strain. As a parent, however, you need to present a strong front for your child, so it is important to be of sound mental and physical health to best care for your child. Getting respite care and utilizing a support system can prevent you from burnout.

Dealing with Stigma

• After you come to terms with your child̵7;s diagnosis, it can still be difficult to avoid the stigma about autism in the community. Some parents of children with autism don̵7;t like to leave the house because they are afraid of stares from other people who don̵7;t understand autism. While it̵7;s easier said than done, you cannot get caught up in other people̵7;s perception of your child. Rather than focusing on what your child is ̶0;missing,̶1; think about the skills and personality he does have -- accept your child for who he is.

Financial Stress

• To help your child be the best he can be, seek out physical, speech and occupational therapy to help your child progress; but these regular visits (multiple times a week) cost a great deal of money. Some of these therapies might be covered under your medical insurance, but you might also find yourself paying out of pocket. According to WebMD, in 2007 families paid an average of $30,000 per year for behavioral therapy, but applied behavioral analysis (ABA) can cost up to $100,000 per year. Depending on the severity of your child̵7;s autism, you need to set up a special needs trust to ensure financial stability when you are unable to continue care for your child. Speak with a financial advisor for special-needs financial planning.